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Thursday, February 9, 2012

the love of my life

i know i suck at this blogging thing. or at least the keeping up with it, but i do stay pretty busy taking care of my little one.
so, life with the man of my life began in 2006. it was a challenge for me to get him. he was hot and seemingly unattainable. i started talking to him and soon he saw what an amazing person i am. whenever i would have a bad day, exor would always make me go for a walk and talk to him about it. i never really opened up to anyone like i did to him. we started going on dates.
i knew he was the one when we would go watch the florida sunsets and sunrises together. x was the first person to ever take me to do that. we even had a favorite spot to go watch them. we soon fell deeply in love and then x got orders to go to japan. the only way for us to stay together was for us to get married and for me to move with him. and so that's what we did. we also found out that we had a little peanut on the way. that's where Taih Luciana Elano comes in.
we moved to japan. what a beautiful country. or at least what we got to see of it. i had an unrealistically easy pregnancy. i enjoyed every minute of it. well except for the hip pain. i had a very tiny frame and my body had to get ready for her to come into this world. i even enjoyed giving birth to my angel. we were in misawa japan when taih was born on april 3rd, 2007. the night she was born was the best night of my life. i had this wonderful little life that i created with the help of my hubby and of course God.
she was 8 pounds 4 ounces. 21 3/4 inches long. and perfect apgar scores. screaming her little lungs out to let the world know that she was here. all of this happened at 7:21pm. but by the middle of the night things started to go downhill and quickly. she wouldn't eat or wake up for me or the nurse. by the next morning there was no response from taih and her breathing was not right. the nurse took my baby away from me. nothing will break a mother's heart more than having her baby taken away because she's not doing good and no one can tell you why. all of the doctors started to run numerous tests. after a day and a half of no results and the hospital ran out of facilities we were sent to okinawa japan. more tests. and an intubator was placed so that taih could breath. so that means lots of tubes going down my babies throat on top of all of the iv's she had. we were there for one week.
then it was off to hawaii.


in hawaii we received taih's diagnosis, non-ketotic hyperglycinemia. the doctor gave us the option to hold he while she goes. and all i could think of was that there is a special place in hell for anyone who suggests that or actually does that. what kind of mother would i be if i didn't even give my daughter a chance. we knew that the odds were not good. we knew that this is an extremely rare disease. we knew taih would constantly have to fight for her life. but one thing was for sure she would not be doing it alone. we would never give up on our baby. God gave her to us for a reason. he knew that we could handle this situation so as loving parents of this beautiful child that we are blessed with the answer was easy. we will fight for her, we will fight with her, and most of all we will fight anyone or anything that stands in our way when it comes to taking care of her.

Saturday, February 4, 2012

let's begin

this is my very first blog and my very first post on it so bare with me as i figure it out. i intend to share with you a lot. mostly things about my daughter, Taih. hence the title of my blog, all about my TAIHger.
right now we will just graze the surface.
taih is a very special girl.she is my only child and will always be my only child unless God has other plans in store. taih was born with a very rare metabolic disorder called non-ketotic hyperglycinemia or nkh for short. this disorder affects less than 500 children worldwide. and what it is is one of her amino acids is over-productive and has caused sever brain damage. taih also has seizures because of this horrible disorder. i will go over this in more detail on a later date.
life can be very stressful, and it can be very fulfilling. i love my life and wouldn't change a single thing.
tomorrow i will start from the beginning when i met my husband. until then good night